Tag: Achromatopsia

Leaving Knoxville late at night, we stopped at a Walmart to rest for the night. At this particular Walmart, we were chancing our luck not to be towed away. Even with "No Overnight RV Parking"  signs posted, we figured it would be okay since others were more than obviously parked for the night. Safety in numbers, right!? The restless night went by and eventually I fell fast asleep.  Early in the morning, Josh woke to make our way to The Great Smokey Mountains.  Beyond exhausted, we stopped at an outdoor store to stock up on cooking fuel.  The store yet to open, Josh climbed back into bed for a couple hours to wait it out.  When we woke, the parking lot was full and Josh headed in.   He was lucky to come out with fuel as he mentioned the store was mainly for tourists with money burning in their pockets. Still bring a bit early, we made our way to a visitors center just outside the park. This feeling like yet another tourist trap, we found ourselves back in bed again.

Our excessive morning sleep caused us to head into the Smokies later than expected, but we pushed forward. Upon entering the park's main Visitor's Center, we were faced with the worst part of the only free (and most visited) National Park on the country- traffic. It's like Christmas-time traffic where everyone is busy getting somewhere, distracted and in some kind of dumb-founded bubble. Drivers aren't kind here for the most part. It took us a few circles to find parking and due to traffic chaos mixed with growling bellies and petty arguing follows suit. We finally made into the visitor center which was littered with aimlessly wandering tourists showing souvenir hunger in their eyes.   Read more

Ok, ok we know.  Chicago happened in July and August.  It’s now November.  Wait, what!?  November!?  Time definitely flies when you are not required to monitor it.  Either way, we spent 12 days hanging in and around Chicago and managed to accumulate a few pictures and memories while we were there.  Interested?  Cool.  We knew you would be.  With that... a few of our cherished memories from our time spent in the Windy City:   Read more

For those who've just come across our blog, or who might be unfamiliar with Achromatopsia (Meisha's eye condition), the quick rundown:

In the retina, our eyes have rods and cones. In short, cones process light, color and are responsible for much of our visual acuity. Rods are primarily for night vision. Meisha's rods are either missing or non-functioning which means: she is completely colorblind (she sees only in greyscale), extremely light sensitive (she must wear sunglasses at all times in the daylight or brightly lit rooms/buildings) and is legally blind (her vision is 20/200- 10% of that of a fully-sighted person and non-correctable). For a bit more info, definitely check out Achromatopsia.info.
 
Every other year, people with Achromatopsia and their friends/family get together for a convention. It's an opportunity for everyone to connect, share stories and learn about the advances in adaptive technologies and scientific research regarding this rare condition. It's also much, much more than that. Because we both have differing perspectives of our experience at the Achromatopsia Convention, we decided to share both of our stories in one post.

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